Comments on: Portrait of a Special Needs Child

By: fayezie

fayezie — Thu, 09 Jul 2009 11:20:06 +0000

oooh yeah, i think i recall hearing about the online service, maybe in the news? however, i think the blurb was targeted towards medicare patients/seniors… would explain why i kinda tuned out… i will look into that option!

By: lori

lori — Tue, 07 Jul 2009 05:33:13 +0000

I hear you. While some hospitals and facilities are transitioning to digital formats, most doctors practices have not. AND, worse yet, the ones that have cannot always “communicate.” Ideally, there will be a format in which all facilities will be able to electronically “talk” to each other, and I will be able to share the information that I’ve created for my son in an online personal health record (thank you HealthVault) with the various physicians whom we see. I get the privacy needs; but I also agree that there is nothing more frustrating than to set aside a half a day to circle around collecting information from various doctors/facilities to take it to another doctor. Why can’t we all have one comprehensive health record? I just don’t know, but it’s a great idea.

By: slamdunk

slamdunk — Wed, 01 Jul 2009 19:00:31 +0000

Wow, thanks for the insight. I would not have thought about how difficult the system can be. Glad I am getting hints on this before we experience it (a least to a smaller degree).

By: fayezie

fayezie — Tue, 30 Jun 2009 17:24:27 +0000

yeah, I agree that it definitely doesn’t need to be run by the government… I’ve watched the state try to “handle” things and it’s a mess. I once went into the DHR/DCFS offices to initiate application for disability benefits for Olivia. There was some miscommunication regarding an appointment, and when I showed up for my appointment (for which they’d mailed me a confirmation), the person was not there. the ladies at the front told me that the state was making budgeting cuts and there were fewer staff and consequently turn around time was affected….

By: Mike

Mike — Tue, 30 Jun 2009 16:13:17 +0000

Records need to be part of a centralized database, no doubt about it. Government owned though perhaps not government run. It would be a nice start to universal health care.