Comments on: United Way of the Coastal Empire – Out of the Box http://fayezie.com/2009/06/19/united-way-of-the-coastal-empire-out-of-the-box/ Wed, 07 Dec 2011 22:56:07 +0000 hourly 1 http://wordpress.com/ By: slamdunk http://fayezie.com/2009/06/19/united-way-of-the-coastal-empire-out-of-the-box/#comment-533 Mon, 22 Jun 2009 01:51:52 +0000 http://fayezie.com/?p=1649#comment-533 Thanks–your blog and comments have been helpful.

We have 2 different folks from early intervention that have been doing home visits for several months now, and they have provided some help (the Mrs. has an advanced degree in a related field and that has helped us know what is good help and what is bs).

He may test out for some of EV services in a few weeks with his next birthday, but anyone around him for 2 minutes can tell he is not like other 2 year olds. Unfortunately, they have been baffled by his behaviors as well–and that is why we are hopeful that this recommended MD can offer some guidance.

Glad you all enjoyed the beach–it was hot and windy here today as well.

]]> By: fayezie http://fayezie.com/2009/06/19/united-way-of-the-coastal-empire-out-of-the-box/#comment-532 Sun, 21 Jun 2009 22:06:57 +0000 http://fayezie.com/?p=1649#comment-532 When I was in the middle of some of my toughest pursuits, on behalf of Olivia, I felt literally like I was managing a small company. In fact, when I went back to work prior to josie being born, I included on my resume some of the “skills” I’d learned/acquired from having a special needs child. On the phone constantly, following up with this nurse here, and that specialist there, and getting records from XYZ, and staying on top of insurance… yadda yadda…

More important than finding a diagnosis, is getting intervention. A lot of states have therapies that you can receive for free or minimal fee for children under 3… They will come and do an assessment on their own to determine if their services are needed, and then they proceed from there…. point being that no matter whether a child has a dx, the earlier they get started in therapies, the better….

Good luck! best advice is to just stay on top, and keep pursuing… We’ve been from Savannah to Augusta to Atlanta and even Tampa Bay for assessments, appointments, etc. But still, the most important thing is that you’ve already started therapies.

]]> By: slamdunk http://fayezie.com/2009/06/19/united-way-of-the-coastal-empire-out-of-the-box/#comment-525 Sat, 20 Jun 2009 02:22:04 +0000 http://fayezie.com/?p=1649#comment-525 Congrats on the nice article and recognition.

I pulled one of the few political strings that I have to try and get us moved up on the endless standby list for a highly recommended specialist at a medical center for our energetic and different little one. We are hopeful for some feedback on his behaviors soon.

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